I was diagnosed with Liposarcoma. It is a very rare cancer that affects only 1% of the adult population. Luckily it was caught very early and after two surgeries and a very healty PET/CT scan later, the tumor was completely removed. Now I have to go through six rounds of preventative chemo and then 6-8 weeks of preventative radiation. They said that I am a very good candidate for the chemo beause I am so young and other than this, very healthy. And these meds are known to work on this type of cancer. But hopefully I will heal faster in between treatments and I will be able to get them every 21 days instead of every 30 which will cut the treatment from 6 months to only 4. Either way, it is still less than a pregnancy!
I checked in today for my first round of chemo. I got here at 11am. They are going to keep me in the hospital for the first week. I made sure to bring a box of Girl Scout Cookies for the nurses. It has made so much of a difference! The nurses are nicer and they hang around to chat about anything and everything. I was so not prepared for today. The doctor only told me that it would be a five day treatment and explained some of the possible side effects. I am down to only a four day treatment instead of a five day treatment. Yay! But they did not tell me that this med can kill part of the heart, didn't expect that. I also didn't expect to be on a 24 hour drip. They said this can change on my next round, but as of now for the next four days I will get this stuff pumped in non-stop. Was absolutely not expecting that. They did not get my port accessed until a few hours later and I was very nervous about that. They gave me a quick educational spill on the port and all was good to go. I made them show me that the port was accessed just to make sure, because my neighbor was not so lucky with hers. The chemo did not come until around 6pm. I was so nervous and anxious to start. My family was here for the start which was nice. The pre-meds went first, then a bag of red chemo and now the 24 hour chemo. I cried when they started talking about what could happen. My daughter lost it and had to step out. I cant believe it is already 10pm. This day has gone by so slow, but fast at the same time. Luckily, I have not had any syptoms yet. I ate a whole tray of food and I could probably eat some more! Getting tired now, maybe I can actually get some sleep tonight...
Don't let the possible symptom talk get you down! I am here for you. Your family is here for you. you are not alone :)
ReplyDeletePraying for you, and that you get back up to feeling great!
ReplyDelete(A friend of Christina G.)
I am a friend of Christina's and she shared about your ordeal,and just want to let you know i am praying for you as well as other people we know.I agree-You are not alone!Virginia
ReplyDeleteThanks for sharing part of what you're going through. My prayers are with you!
ReplyDeletea friend of Christina....Michelle
Hey Theresa and Louis,
ReplyDeleteJust wanted to check in and let you know that we are thinking about you and hoping and praying for your successful treatment. Having been there, I know it's not fun. But you have the right attitude and sounds like a network of loving friends and family. That's the best medicine in the world! Tim
PS:You've started a tough journey, and when you reach your destination, you'll be a stronger, better person. Hang in there and believe you will make it!
ReplyDeletePSS: Ask your doctor about Zofran. That's the anti-nausea medicine that worked for me.